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Friday, December 16th 2005

5:05 AM

Thought I would update this since it's been awhile

  • How I feel: lots of pain today and really tired
  • Thought of the day: Yesterday's the past and tomorrow's the future. Today is a gift - which is why they call it the present

I have been pretty sick lately. The pain is getting worse, but I do have some news on my Kock Pouch surgery request...

I have to make a appointment with my Gastroenterology in Vancouver and get a scope to see how much polyp growth I have in my stomach, small intestine, and duodenum. After that I get that doctor to send the results to my Doctor here and he then sends the results along with two forms I have to fill out. Then once Dr. Cohen sees the reports I get put on the waiting list for the surgery.

I found out some stuff when I got the letter from Toronto that I didn't really like, I mean I knew FAP can turn to cancer, but now my has been put into a different category that's called the Familiar GI Cancer registry. I used to be under the Familiar Adenomatous Polyposis Disease registry.

I was doing a seach on FAP tonight and I found out from genetichealth  some stuff I didn't know. I have an elevated risk of contracting certain other types of cancer. Among them are cancer of the small bowel, cancer of the thyroid and cancer of the brain, as well as a rare form of childhood liver cancer.

I kinda knew there was a small chance of cancer showing up, but to find out that I could get cancer in other areas like my brain, liver, and thyroid is all new to me and has me just a bit spooked. I'm trying not to let it get me down, but sometimes when I am alone it's all I can think about especially cancer of the brain

For some good news...

Sylvain and I have been getting along way better lately.  We are starting to talk more and spend time on "US". It's a very welcome change. I have also decided to get some counseling. I am a little worried because I don't know what to except and the fact that I am so shy in real life. I know this is going to help, but I have a feeling it's going to take more than just a few sessions to get me figured out

That's it for now, I got to try to get some sleep

Till Later

Joann


 

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